<
https://www.medicalrepublic.com.au/long-covid-debuts-on-me-cfs-registry/100812>
"Long covid will be included in the Australian ME/CFS (AusME) Registry and
Biobank in hopes of expanding research into post-infection diseases.
While it is estimated that 5-10% of covid cases in Australia give rise to long
covid, heterogeneity in estimates have arisen due to difficulties in
characterising the complex and divergent disorder.
Growing research has linked long covid to myalgic encephalomyelitis/chronic
fatigue syndrome (ME/CFS) – which is characterised as overwhelming fatigue that
is not improved by rest and is seen in around half of all long covid cases,
research suggests.
Emerge Australia, a national advocacy group for chronic fatigue syndrome, is
partnering with universities across the country to expand its research to long
covid as well as ME/CFS by inviting people over 12 years old with
post-infection diseases to enrol on the AusME registry
The registry will be officially launched in a webinar tomorrow (Thursday).
“People can join the AusME registry by signing up online and completing a
series of surveys including medical history, co-occurring conditions, symptoms,
medications, and quality of life,” said Emerge in a press release.
Patients can also provide blood which “will help discover disease causes and
treatments”."
Via Violet BLue’s
Pandemic Roundup: October 19, 2023
https://www.patreon.com/posts/pandemic-roundup-91266658
Cheers,
*** Xanni ***
--
mailto:xanni@xanadu.net Andrew Pam
http://xanadu.com.au/ Chief Scientist, Xanadu
https://glasswings.com.au/ Partner, Glass Wings
https://sericyb.com.au/ Manager, Serious Cybernetics
